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Beyond Brain Tumours

Beyond Brain Tumours

By: Brain Tumour Foundation of Canada
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About this listen

Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Learn more about Brain Tumour Foundation of Canada’s resources, programs, and services for people affected by a brain tumour. Visit www.BrainTumour.ca.

© 2025 Beyond Brain Tumours
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Episodes
  • Balancing care, recovery, and school: How support, compassion & advocacy pave the way | Part 2
    May 17 2025

    Welcome back, everyone!

    In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience and the importance of kindness and patient advocacy.

    In part 2, Patrick dives into the heart of his support network- his family and friends, and the important role they played in supporting him through treatment, recovery and school. Patrick also discusses patient advocacy and what it means to him. Tune in for an open conversation about compassion, community and advocacy.

    For additional information, you may visit:

    Medical alert bracelets: MedicAlert Foundation Canada | We Speak When You Can't

    Support groups: Support Groups - Brain Tumour Foundation of Canada

    Advocating for yourself: Advocating for Yourself - Brain Tumour Foundation of Canada

    Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

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    30 mins
  • Balancing care, recovery, and school: how support, compassion and advocacy pave the way | Part 1
    May 15 2025

    One step at a time: Navigating emotions, support, and self-advocacy after a brain tumour diagnosis

    Welcome to our podcast! Today, we sit down with Paul, a young adult brain tumour survivor and volunteer with Brain Tumour Foundation of Canada. Join us as our guest discusses the emotions that come with a brain tumour diagnosis and shares how he tackled them, one step at a time. He also discusses the value of building a strong support system, learning to advocate for his own needs, and the practical challenges of returning to work and establishing new routines. This conversation offers encouragement and advice for anyone facing similar experiences, showing that progress is possible, even through small steps.

    Please visit our website to learn more about our programs, resources, and ways in which you can offer your support!


    For additional information, you may visit:

    Medical alert bracelets: MedicAlert Foundation Canada | We Speak When You Can't

    Support groups: Support Groups - Brain Tumour Foundation of Canada

    Advocating for yourself: Advocating for Yourself - Brain Tumour Foundation of Canada

    Cancer and Work | Cancer and Work*

    Transportation | Canadian Cancer Society

    Support groups:Care & Support - Brain Tumour Foundation of Canada

    Get involved with BTFC! Get Involved - Brain Tumour Foundation of Canada

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    40 mins
  • Épisode 9 - Entrevue avec Maria (en français)
    May 8 2024

    Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome.

    Suivez-nous sur Facebook et sur Instagram.

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    48 mins
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